Gynecological cancer survivors and community support services: referral, awareness, utilization and satisfaction
Identifieur interne : 005D10 ( Main/Exploration ); précédent : 005D09; suivant : 005D11Gynecological cancer survivors and community support services: referral, awareness, utilization and satisfaction
Auteurs : Vanessa L. Beesley [Australie] ; Monika Janda [Australie] ; Elizabeth G. Eakin [Australie] ; Josephine F. Auster [Australie] ; Suzanne K. Chambers [Australie] ; Joanne F. Aitken [Australie] ; Jeff Dunn [Australie] ; Diana Battistutta [Australie]Source :
- Psycho‐Oncology [ 1057-9249 ] ; 2010-01.
Descripteurs français
- KwdFr :
- Adaptation psychologique, Adolescent, Adulte, Adulte d'âge moyen, Association thérapeutique, Bilan opérationnel (), Comportement du consommateur, Conscience immédiate, Enquêtes de santé, Femelle, Humains, Jeune adulte, Orientation vers un spécialiste (utilisation), Queensland, Services communautaires en santé mentale (utilisation), Soutien social, Stade de la tumeur, Sujet âgé, Survivants (psychologie), Tumeurs de l'appareil génital féminin (), Tumeurs de l'appareil génital féminin (anatomopathologie), Tumeurs de l'appareil génital féminin (psychologie), Études transversales.
- MESH :
- anatomopathologie : Tumeurs de l'appareil génital féminin.
- psychologie : Survivants, Tumeurs de l'appareil génital féminin.
- utilisation : Orientation vers un spécialiste, Services communautaires en santé mentale.
- Adaptation psychologique, Adolescent, Adulte, Adulte d'âge moyen, Association thérapeutique, Bilan opérationnel, Comportement du consommateur, Conscience immédiate, Enquêtes de santé, Femelle, Humains, Jeune adulte, Queensland, Soutien social, Stade de la tumeur, Sujet âgé, Tumeurs de l'appareil génital féminin, Études transversales.
English descriptors
- KwdEn :
- Adaptation, Psychological, Adolescent, Adult, Aged, Awareness, Combined Modality Therapy, Community Mental Health Services (utilization), Consumer Behavior, Cross-Sectional Studies, Female, Genital Neoplasms, Female (pathology), Genital Neoplasms, Female (psychology), Genital Neoplasms, Female (therapy), Health Surveys, Humans, Middle Aged, Neoplasm Staging, Queensland, Referral and Consultation (utilization), Social Support, Survivors (psychology), Utilization Review (statistics & numerical data), Young Adult.
- MESH :
- geographic : Queensland.
- pathology : Genital Neoplasms, Female.
- psychology : Genital Neoplasms, Female, Survivors.
- statistics & numerical data : Utilization Review.
- therapy : Genital Neoplasms, Female.
- utilization : Community Mental Health Services, Referral and Consultation.
- Adaptation, Psychological, Adolescent, Adult, Aged, Awareness, Combined Modality Therapy, Consumer Behavior, Cross-Sectional Studies, Female, Health Surveys, Humans, Middle Aged, Neoplasm Staging, Social Support, Young Adult.
Abstract
Objectives: To quantify gynecological cancer survivors' referral to, awareness of, utilization of and satisfaction with community support services, as well as the factors associated with service use. Methods: In 2004, 802 gynecological cancer survivors, 3 months–5 years post‐diagnosis, completed a postal questionnaire (56% response rate). Descriptive statistics summarized outcome prevalences. Logistic regression models identified correlates of service utilization. Results: Substantial proportions of women were aware of the main cancer support organization, Cancer Council Queensland (72%), and of information booklets (74%), helplines (66%), support groups (56%) and internet information (50%). Less than half were aware of other services. The most commonly used resources and services were information booklets (37%), the internet (23%), and helplines (20%). More broadly, 43% utilized information/internet support, 30% utilized psychosocial services and 27% utilized functional/practical services. Approximately one‐fifth (19%) used more than one support types. Having a health‐care provider referral, being diagnosed with lymphedema or living in northern Queensland were associated with higher odds of service use in all three of the support types. While most (86%) of those referred used a service, only a few women received referrals. Among users, satisfaction with services was high. Conclusions: While gynecological cancer survivors accessed a variety of support, there is a need to ensure women are aware of services. Given the low prevalence of referrals and that referral was a key influence on service use, clinician education may be necessary to improve service referral. Organizations should also consider strategies to keep services high on clinicians' radars. Copyright © 2009 John Wiley & Sons, Ltd
Url:
DOI: 10.1002/pon.1528
Affiliations:
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Beesley</name><affiliation wicri:level="1"><country xml:lang="fr">Australie</country><wicri:regionArea>Institute of Health and Biomedical Innovation, School of Public Health, Queensland University of Technology, Brisbane</wicri:regionArea><wicri:noRegion>Brisbane</wicri:noRegion></affiliation><affiliation wicri:level="1"><country xml:lang="fr">Australie</country><wicri:regionArea>Cancer and Population Studies Group, Queensland Institute of Medical Research, Brisbane</wicri:regionArea><wicri:noRegion>Brisbane</wicri:noRegion></affiliation><affiliation wicri:level="1"><country xml:lang="fr">Australie</country><wicri:regionArea>Queensland Institute of Medical Research, Cancer and Population Studies Group, PO Royal Brisbane Hospital, Qld. 4029</wicri:regionArea><wicri:noRegion>Qld. 4029</wicri:noRegion></affiliation></author><author><name sortKey="Janda, Monika" sort="Janda, Monika" uniqKey="Janda M" first="Monika" last="Janda">Monika Janda</name><affiliation wicri:level="1"><country xml:lang="fr">Australie</country><wicri:regionArea>Institute of Health and Biomedical Innovation, School of Public Health, Queensland University of Technology, Brisbane</wicri:regionArea><wicri:noRegion>Brisbane</wicri:noRegion></affiliation></author><author><name sortKey="Eakin, Elizabeth G" sort="Eakin, Elizabeth G" uniqKey="Eakin E" first="Elizabeth G" last="Eakin">Elizabeth G. Eakin</name><affiliation wicri:level="1"><country xml:lang="fr">Australie</country><wicri:regionArea>Cancer Prevention Research Centre, School of Population Health, University of Queensland, Brisbane</wicri:regionArea><wicri:noRegion>Brisbane</wicri:noRegion></affiliation></author><author><name sortKey="Auster, Josephine F" sort="Auster, Josephine F" uniqKey="Auster J" first="Josephine F" last="Auster">Josephine F. Auster</name><affiliation wicri:level="1"><country xml:lang="fr">Australie</country><wicri:regionArea>Institute of Health and Biomedical Innovation, School of Public Health, Queensland University of Technology, Brisbane</wicri:regionArea><wicri:noRegion>Brisbane</wicri:noRegion></affiliation></author><author><name sortKey="Chambers, Suzanne K" sort="Chambers, Suzanne K" uniqKey="Chambers S" first="Suzanne K" last="Chambers">Suzanne K. Chambers</name><affiliation wicri:level="1"><country xml:lang="fr">Australie</country><wicri:regionArea>Viertel Centre for Research in Cancer Control, Cancer Council Queensland, Brisbane</wicri:regionArea><wicri:noRegion>Brisbane</wicri:noRegion></affiliation></author><author><name sortKey="Aitken, Joanne F" sort="Aitken, Joanne F" uniqKey="Aitken J" first="Joanne F" last="Aitken">Joanne F. Aitken</name><affiliation wicri:level="1"><country xml:lang="fr">Australie</country><wicri:regionArea>Viertel Centre for Research in Cancer Control, Cancer Council Queensland, Brisbane</wicri:regionArea><wicri:noRegion>Brisbane</wicri:noRegion></affiliation></author><author><name sortKey="Dunn, Jeff" sort="Dunn, Jeff" uniqKey="Dunn J" first="Jeff" last="Dunn">Jeff Dunn</name><affiliation wicri:level="1"><country xml:lang="fr">Australie</country><wicri:regionArea>Viertel Centre for Research in Cancer Control, Cancer Council Queensland, Brisbane</wicri:regionArea><wicri:noRegion>Brisbane</wicri:noRegion></affiliation></author><author><name sortKey="Battistutta, Diana" sort="Battistutta, Diana" uniqKey="Battistutta D" first="Diana" last="Battistutta">Diana Battistutta</name><affiliation wicri:level="1"><country xml:lang="fr">Australie</country><wicri:regionArea>Institute of Health and Biomedical Innovation, School of Public Health, Queensland University of Technology, Brisbane</wicri:regionArea><wicri:noRegion>Brisbane</wicri:noRegion></affiliation></author></analytic><monogr></monogr><series><title level="j" type="main">Psycho‐Oncology</title><title level="j" type="alt">PSYCHO-ONCOLOGY</title><idno type="ISSN">1057-9249</idno><idno type="eISSN">1099-1611</idno><imprint><biblScope unit="vol">19</biblScope><biblScope unit="issue">1</biblScope><biblScope unit="page" from="54">54</biblScope><biblScope unit="page" to="61">61</biblScope><biblScope unit="page-count">8</biblScope><publisher>John Wiley & Sons, Ltd.</publisher><pubPlace>Chichester, UK</pubPlace><date type="published" when="2010-01">2010-01</date></imprint><idno type="ISSN">1057-9249</idno></series></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">1057-9249</idno></seriesStmt></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adaptation, Psychological</term><term>Adolescent</term><term>Adult</term><term>Aged</term><term>Awareness</term><term>Combined Modality Therapy</term><term>Community Mental Health Services (utilization)</term><term>Consumer Behavior</term><term>Cross-Sectional Studies</term><term>Female</term><term>Genital Neoplasms, Female (pathology)</term><term>Genital Neoplasms, Female (psychology)</term><term>Genital Neoplasms, Female (therapy)</term><term>Health Surveys</term><term>Humans</term><term>Middle Aged</term><term>Neoplasm Staging</term><term>Queensland</term><term>Referral and Consultation (utilization)</term><term>Social Support</term><term>Survivors (psychology)</term><term>Utilization Review (statistics & numerical data)</term><term>Young Adult</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adaptation psychologique</term><term>Adolescent</term><term>Adulte</term><term>Adulte d'âge moyen</term><term>Association thérapeutique</term><term>Bilan opérationnel ()</term><term>Comportement du consommateur</term><term>Conscience immédiate</term><term>Enquêtes de santé</term><term>Femelle</term><term>Humains</term><term>Jeune adulte</term><term>Orientation vers un spécialiste (utilisation)</term><term>Queensland</term><term>Services communautaires en santé mentale (utilisation)</term><term>Soutien social</term><term>Stade de la tumeur</term><term>Sujet âgé</term><term>Survivants (psychologie)</term><term>Tumeurs de l'appareil génital féminin ()</term><term>Tumeurs de l'appareil génital féminin (anatomopathologie)</term><term>Tumeurs de l'appareil génital féminin (psychologie)</term><term>Études transversales</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>Queensland</term></keywords><keywords scheme="MESH" qualifier="anatomopathologie" xml:lang="fr"><term>Tumeurs de l'appareil génital féminin</term></keywords><keywords scheme="MESH" qualifier="pathology" xml:lang="en"><term>Genital Neoplasms, Female</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Survivants</term><term>Tumeurs de l'appareil génital féminin</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Genital Neoplasms, Female</term><term>Survivors</term></keywords><keywords scheme="MESH" qualifier="statistics & numerical data" xml:lang="en"><term>Utilization Review</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Genital Neoplasms, Female</term></keywords><keywords scheme="MESH" qualifier="utilisation" xml:lang="fr"><term>Orientation vers un spécialiste</term><term>Services communautaires en santé mentale</term></keywords><keywords scheme="MESH" qualifier="utilization" xml:lang="en"><term>Community Mental Health Services</term><term>Referral and Consultation</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adaptation, Psychological</term><term>Adolescent</term><term>Adult</term><term>Aged</term><term>Awareness</term><term>Combined Modality Therapy</term><term>Consumer Behavior</term><term>Cross-Sectional Studies</term><term>Female</term><term>Health Surveys</term><term>Humans</term><term>Middle Aged</term><term>Neoplasm Staging</term><term>Social Support</term><term>Young Adult</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adaptation psychologique</term><term>Adolescent</term><term>Adulte</term><term>Adulte d'âge moyen</term><term>Association thérapeutique</term><term>Bilan opérationnel</term><term>Comportement du consommateur</term><term>Conscience immédiate</term><term>Enquêtes de santé</term><term>Femelle</term><term>Humains</term><term>Jeune adulte</term><term>Queensland</term><term>Soutien social</term><term>Stade de la tumeur</term><term>Sujet âgé</term><term>Tumeurs de l'appareil génital féminin</term><term>Études transversales</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Objectives: To quantify gynecological cancer survivors' referral to, awareness of, utilization of and satisfaction with community support services, as well as the factors associated with service use. Methods: In 2004, 802 gynecological cancer survivors, 3 months–5 years post‐diagnosis, completed a postal questionnaire (56% response rate). Descriptive statistics summarized outcome prevalences. Logistic regression models identified correlates of service utilization. Results: Substantial proportions of women were aware of the main cancer support organization, Cancer Council Queensland (72%), and of information booklets (74%), helplines (66%), support groups (56%) and internet information (50%). Less than half were aware of other services. The most commonly used resources and services were information booklets (37%), the internet (23%), and helplines (20%). More broadly, 43% utilized information/internet support, 30% utilized psychosocial services and 27% utilized functional/practical services. Approximately one‐fifth (19%) used more than one support types. Having a health‐care provider referral, being diagnosed with lymphedema or living in northern Queensland were associated with higher odds of service use in all three of the support types. While most (86%) of those referred used a service, only a few women received referrals. Among users, satisfaction with services was high. Conclusions: While gynecological cancer survivors accessed a variety of support, there is a need to ensure women are aware of services. Given the low prevalence of referrals and that referral was a key influence on service use, clinician education may be necessary to improve service referral. Organizations should also consider strategies to keep services high on clinicians' radars. Copyright © 2009 John Wiley & Sons, Ltd</div></front></TEI><affiliations><list><country><li>Australie</li></country></list><tree><country name="Australie"><noRegion><name sortKey="Beesley, Vanessa L" sort="Beesley, Vanessa L" uniqKey="Beesley V" first="Vanessa L" last="Beesley">Vanessa L. Beesley</name></noRegion><name sortKey="Aitken, Joanne F" sort="Aitken, Joanne F" uniqKey="Aitken J" first="Joanne F" last="Aitken">Joanne F. Aitken</name><name sortKey="Auster, Josephine F" sort="Auster, Josephine F" uniqKey="Auster J" first="Josephine F" last="Auster">Josephine F. Auster</name><name sortKey="Battistutta, Diana" sort="Battistutta, Diana" uniqKey="Battistutta D" first="Diana" last="Battistutta">Diana Battistutta</name><name sortKey="Beesley, Vanessa L" sort="Beesley, Vanessa L" uniqKey="Beesley V" first="Vanessa L" last="Beesley">Vanessa L. Beesley</name><name sortKey="Beesley, Vanessa L" sort="Beesley, Vanessa L" uniqKey="Beesley V" first="Vanessa L" last="Beesley">Vanessa L. Beesley</name><name sortKey="Chambers, Suzanne K" sort="Chambers, Suzanne K" uniqKey="Chambers S" first="Suzanne K" last="Chambers">Suzanne K. Chambers</name><name sortKey="Dunn, Jeff" sort="Dunn, Jeff" uniqKey="Dunn J" first="Jeff" last="Dunn">Jeff Dunn</name><name sortKey="Eakin, Elizabeth G" sort="Eakin, Elizabeth G" uniqKey="Eakin E" first="Elizabeth G" last="Eakin">Elizabeth G. Eakin</name><name sortKey="Janda, Monika" sort="Janda, Monika" uniqKey="Janda M" first="Monika" last="Janda">Monika Janda</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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